Last Saturday, I attended the third annual Food Allergy
Conference in Salt Lake City, put on by the
Utah Food Allergy Network. The
half-day conference was jam-packed full of information and ideas – after a
dozen years of dealing with food allergies, I still found myself taking lots of
notes and learning new things.
Dr. Robert Silge, from Salt Lake City and Taylorsville, gave
a presentation that just about blew my socks off with the amount of information
he crammed into a single hour. He started off by discussing skin and blood
tests, how they work, and what they mean. He reminded us that those tests can
tell you the chance that you’ll have a reaction, but not how severe the reaction
will be. So just because your score is “low” doesn’t mean you won’t have a
severe reaction to that food someday.
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I lead a discussion on eating out and traveling with food allergies |
Dr. Silge also talked about the role platelet activating
factor (PAF) plays in reactions, and how epinephrine works. He summarized EGID
and how those diseases differ from a regular food allergy. Then he moved on to
talk about the various treatments that are currently being studied, and how
many of them are promising, but there is no long-term evidence to show how
effective any of them are long-term yet, and that the results so far show widely
varying results that are highly individual for each patient. And that’s just a
sample of the topics he covered. (And I was left wondering if any research is
being done into how to boost the enzymes needed to break down PAFs in our
bodies, so that we don’t experience anaphylaxis. I’ll have to look into that
soon.)
In addition, there were other presentations on eosinophilic
disorders (EGIDs), how to handle food allergy plans for school, feeding and
swallowing therapy, creative cooking with food substitutions, tips for handling
social situations, how to live well with a chronic health condition, and tips
for adults living with food allergies and EGIDs.
I was even invited to lead a discussion called “Eating Out
& Traveling with Dietary Restrictions,” which turned out to be a lot of
fun, and I hope helpful for everyone who participated.
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Teens like my son and his friend had their own sessions. |
For the first time, the conference this year included a teen
track, where teens spent their half-day entirely in their own rooms discussing
topics related to their unique needs. My son and his friend were able to
attend, and my son even gave a short PowerPoint introduction of himself and his
allergies as an icebreaker. Although neither my son nor his friend were sure
they needed to attend (“I know how to handle my allergies, Mom!”), they both
seemed to have a good time and even thought of friends they should have invited
afterwards. So I think the teen track was a success and will be an important
part of next year’s conference.
Many thanks to UFAN board members and volunteers for putting
together this amazing half-day conference. I’m already looking forward to next
year!
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