Why Are Voluntary Guidelines Useful?

by Kelley Lindberg


On January 4, 2011, President Obama signed into law the Food Allergy and Anaphylaxis Act (FAAMA), which directs the federal government to create national, voluntary food allergy management guidelines for schools. It also provides for school-based food allergy management incentive grants to help public schools implement those management guideliens.

This is great news. Right now, every school, every school district, and every state is on their own when it comes to forging food allergy guidelines for teachers and administrators to use in those schools. That means a whole lot of wheels being reinvented from scratch every year – and, more likely, a whole lot of wheels that will never even get built because schools are just too busy and financially strapped to take the time to start something that sounds that complicated.

By tapping a coalition of groups including the Food Allergy and Anaphylaxis Network (FAAN), the National Association of School Nurses (NASN), and the National School Boards Association (NSBA) to create these national guidelines, this new law will make it so much easier for all of those thousands of different school districts to use or adapt the guidelines, instead of starting from scratch. The easier something is to create, the more likely it will be to 1) be created, and 2) be supported and followed.

But many people in the food allergy community are upset to hear that the guidelines will be voluntary instead of mandatory.

For now, voluntary is a huge step forward, and will likely garner much more support than mandatory would have.

Chris Weiss addressed this issue in his FAAN blog. Read his take on the situation in his posting, “Reflecting on FAAMA.”

In addition, Michelle Fogg, the president and founder of the Utah Food Allergy Network (UFAN), wrote a response to a concerned parent, explaining why voluntary guidelines are a vital, useful, and necessary step, even though they aren’t mandatory. Here is what Michelle says:

Mandates are nearly impossible to pass in government and receive huge opposition no matter what the subject is. I can't speak directly for FAAN as to their motives for 'voluntary' BUT I do know that no 'one size fits all' approach would be applicable for every state and every school. The States don't want big government coming in and telling them what and how to do things. In my opinion, having a national set of guidelines for states to use when creating their own would give more uniformity generally and would save many states from having to create guidelines out of thin air. At least now there will be credible uniform information available to any state or school district wanting better management of food allergic children. It is up to us as citizens to make sure the powers that be know we want statewide guidelines in place...again these will be voluntary as no one approach is innately best for all. I have already spoken with the UT State School Board and Office of Education and the moment I said "voluntary guidelines" NOT a mandate, they began to listen and show interest. I understand your frustration because as a mother we think this should be a no brainer - a must have!! I think it will be standard in the future but unfortunately there is political red tape and it is going to take us as parents and a community speaking up and demanding it from our individual schools, districts, and representatives. Watch for info to come soon on how you can help support UFANs efforts to get statewide guidelines created and the information disseminated.

...I am currently engaged in the battle to get the State to mandate insurance coverage for medical formulas for EGIDs and it is crazy trying to get a mandate to go through (this is our second attempt)! The FAAMA took almost eight years to pass and had to be rolled into the larger Food and Safety Bill to even make it through. I'm happy because I think it's a victory to have any guidance out there and hopefully many will take advantage of it. If they don't then we'll have to demand it, right?!

Thanks for sharing your feelings with me,

Michelle Fogg
President & Founder
Utah Food Allergy Network
http://www.utahfoodallergy.org/

Food Safety Bill Passes Congress!

by Kelley Lindberg


Great news! On Dec. 21, the food safety bill called the Food Allergy and Anaphylaxis Management Act (FAAMA) was passed by Congress. This act will create voluntary but badly needed national guidelines for managing food allergies in schools.

Timed to coincide with FAAMA’s passage, USA Today printed a special supplement last week devoted entirely to food allergy. The USA Today Food Allergy supplement includes short, concise, and informative articles on the difference between intolerance and allergy, the latest treatment studies, how to recognize a reaction, tips for celebrating the New Year safely, a personal experience from chef and FAAN spokesperson Ming Tsai. It also includes ads and coupons for food-allergy-friendly manufacturers.

Chris Weiss, VP of Advocacy and Government Relations at the Food Allergy and Anaphylaxis Network (FAAN), sent out a letter to FAAN members explaining why FAAMA is so important, and why this is such good news for us. Here is what Chris says:

Members of the food allergy community:

This is Chris Weiss, FAAN's VP of Advocacy and Government Relations, and I'd like to share some GREAT NEWS!

Five years after the Food Allergy and Anaphylaxis Management Act (FAAMA) was introduced in the U.S. Congress, FAAMA has finally passed as part of the food safety bill and is expected to be signed into law by President Obama.

FAAMA was originally introduced into Congress back in 2005 as part of FAAN's inaugural Kids' Congress on Capitol Hill.

Five years later, and after overcoming some last-minute procedural hurdles during the lame duck session, the food safety bill was approved by the Senate on Dec. 19, and then by the House on Dec. 21.

FAAMA will lead to the much-needed creation of national food allergy management guidelines for schools. While these guidelines are voluntary, they will provide schools without existing food allergy management policies with a valuable resource.

These policies are critical to help educate school officials about food allergy, a potentially life-threatening medical condition, and help them implement emergency plans in case a severe reaction occurs on school grounds. Studies have shown that up to 25% percent of reactions in school occur in children with previously undiagnosed food allergy.

Earlier this month, a fatal reaction occurred at a school in Chicago, allegedly due to food that was consumed at school.

The guidelines will also benefit parents of children with food allergies, who are looking for a vetted resource to help them safely manage their child’s food allergies in the school setting.

Written in collaboration with FAAN, the national guidelines will not supersede existing or pending state laws or guidelines concerning schools and food allergies. The FAAMA guidelines should be seen as a complement to existing guidelines created as a result of other legislation.

This tremendous accomplishment was made possible by the thousands of individuals who advocated for this legislation and many elected representatives who co-sponsored FAAMA over the years, most notably Sen. Christopher Dodd (D-Conn.), whose daughter has a food allergy, and Rep. Steny Hoyer (D-Md.), who has a grandchild with a food allergy.

We celebrate the passage of FAAMA today, but our work is not done. FAAN will continue to work diligently to raise awareness, educate others, and advocate on behalf of the millions of Americans with food allergy and anaphylaxis.

I'd personally like to thank all of you who took the time to contact your Senator(s) and Representative in support of FAAMA, along with the hundreds of families who attended the FAAN Kids' Congress on Capitol Hill in 2005, 2007, and 2009. We couldn't have done it without you.

Thank you!

And many thanks to the folks at FAAN who pushed for 5 years to make this happen. What a great way to ring in a new year…