Monday, August 18, 2008

It's Back to School Time!

First things first: Oksana Chusovitina won the silver medal last night! Yea! (I’m not even going to mention how it should have been a gold, and Alicia Sacramone should have gotten the bronze. No siree. Not gonna mention it.)

Now that I’ve gotten that out of my system…

As of today, there is one more week of freedom for my son. One more week of staying up too late, hanging out with friends, reveling in the glorious sunshiny afternoons of summer vacation.

Then, blammo! Just like that, it will be all over, and then it’s back to uniforms, lunchboxes, worksheets, sitting still at a desk all day, asking permission to go to the bathroom, and worst of all – homework.

My son is refusing to think about it. As far as he’s concerned, life is one big summer, punctuated by annoying periods of darkness called school, which he effectively wipes from his memory every June.

Whether or not HE wants to think about it, I HAVE to. And so do a lot of other parents. That’s why back-to-school was the topic of discussion at our Davis County chapter meeting of UFAN last week.

We welcomed six new families to our group last week. Some were newly diagnosed with food allergies and trying to find out how to adjust to a new way of thinking about food. Others have been living with food allergies for a while, but are facing preschool or school for the first time. Some came from as far away as West Jordan and Riverton. Others were from here in Layton.

We talked about ways to prepare for the new school year – one member described how she just showed her daughter’s kindergarten class the Alexander the Elephant food allergy video from FAAN (Food Allergy and Anaphylaxis Network), which helps explain the seriousness of food allergies to kids.

We also discussed food allergy tables in the lunchroom, ways to minimize contact with peanut butter and milk on doorknobs and trashcans, and giving presentations to teachers.

From there, we ranged onto other topics that always seem to be seething just below the surface – why family members are often the hardest to convince that food allergies are both real and as serious as we say, how to fly in a plane full of peanuts, how you have to read labels EVERY TIME in case a manufacturing process or recipe changes, and how to cook when family members are allergic to drastically different things.

It was a lively discussion, and on that left us all with new ideas, new suggestions – and a few new worries. Of course, that’s the way life is. But it also left us looking forward to next month’s meeting, to seeing what new things we can share.

Last spring, I posted some tips for dealing with your child’s school. I’ll repeat them here, in the hopes that they help smooth the way for other parents this week. Good luck, and enjoy these remaining few days of summer. I know my son is.

1. Volunteer a lot, so the staff knows you and counts on you (not just for allergy issues). If the only time they see you is when there's a food allergy, then you may start feeling like they're whispering "Oh no, here she comes again." But if they see you as a "Gosh, what would we do without her" kind of volunteer, then the occasional food issue will be coming from a great mom who's making a reasonable request.

2. If someone else is already the class mom, or you can't volunteer for that position, tell the teacher you really need to attend all parties and field trips because of the food allergy. The teacher may want to let the other parents know that you'll be selected for all the special events because of the food allergy, so that they don't think the teacher is playing favorites or something.

3. Ask the principal if there are other food allergic kids in the same grade, and if they can be assigned to the same teacher. That makes it easier for the allergic parents to trade off field-trip and party chaperone duties, it puts all the kids in the same class so that the classroom can be more allergen-free, and gives you some backup in food issues. (It's nice to NOT be the only one.) Statistically, about one in twenty kids has a food allergy, so chances are good there will be more kids than just your child.

4. Volunteer to shop for all the snacks or food materials for classroom parties or food educational units (like making noodle necklaces or gingerbread houses, etc.). Tell the teacher if she'll collect money donations, you'll go buy all the ingredients. They're usually delighted to get out of having to shop.

5. Make several copies of your Food Allergy Action Plan (see FAAN’s website) and ask to hang one in the office, the cafeteria kitchen, and the classroom, so that your child's photo and "What to do in case of a reaction" instructions are handy no matter where he is.

6. Practice with your child what he should do if he "feels funny." Role-play and pretend you're the teacher, and have him come up and tell you what's wrong. Often our kids are too shy about asking for help, so have him practice with you, and with the teacher if possible. Not only does that give your child words to use if something happens, but it helps impress upon the teacher how important it is.

7. I get on my principal's staff meeting agenda at the first of the year and give a 5-minute talk about allergies and demonstrate the EpiPen. I also give a presentation to my son's class, and all the teachers and aides he comes into contact with. If you're not comfortable doing this, ask if there are other allergic parents that you can contact. Talk to them about ways to teach the teachers -- maybe another mom would be willing to give the presentation if you make the photocopies. It's easier when there are two of you involved!

8. Remember, In Utah, your child can legally carry his EpiPen. But he probably can't administer it to himself in an emergency, so make sure the teachers and everyone else know where it is and how to use it. My son carries his in his backpack so that it's always in the classroom, and I also fill a second prescription and they keep it in the office. So he has two sets at school.

9. If he's going to be having lunch at school, talk to the Lunch Lady and cafeteria monitor. Introduce your child, tell her what your child is allergic to, and let your child know that the Lunch Lady is a friend that will help keep him safe. Then remember the Lunch Lady and the cafeteria monitor on holidays with little thank you cards or gifts to show you appreciate them. Few people do that. But it will help keep your child's food issues fresh in their mind, and they'll get to know him well.

10. Ask about setting up a food table just for allergic kids. All that’s required is a table with a sign that says allergies only, and the cafeteria monitors clean it with a separate marked bucket and cloth. Don’t let them make your child eat in a separate room or the principal’s office. He shouldn’t be punished just because he’s allergic to some foods! Ask the principal to mention the allergy table in a newsletter or other information that goes home with kids at the beginning of the year. You may find other kids with allergies expressing an interest in sitting at the table if they know it’s available.

11. Ask the parents of your child’s friends to send safe lunches with them every once in a while, so they can eat with your child. Make it a fun place to be!

12. Most peanut-allergic kids don’t react to the smell of peanut butter in the air, but a few do. If you are worried if your child will react to the air in the cafeteria, ask to take him in for a “practice run” right now. Sit in the cafeteria for half an hour and see if he reacts. If he doesn’t, cross that worry off your list.

13. Eat lunch with him for the first few days. That will reassure both of you that you can both handle this!

14. Talk to the teacher about which cafeteria door your child should use to avoid peanut butter contact (usually the one furthest from the playground), where to put his lunch bag after lunch, and where his EpiPens will be.

15. Remind your child NOT to throw away his lunch trash. Tell him to bring it home in his lunch bag, so that he can avoid using the trash can. If another kid slam-dunks a half-full milk carton in the trash can, you don’t want your milk-allergic child to get splashed.

16. Be aware and be prepared, but don't panic! School is going to be a lot of fun, and your child will do just fine. And believe it or not, so will you!

No comments: